Information
Links To Additional Information
Facts on Infant Hearing Loss
Blindness and Deafness Resources DB-Link (National Information Clearinghouse on Children who are Deaf-Blind) Deaf-Blind Perspectives Helen Keller National Center for Deaf-Blind Youth and Adults (HKNC) The Foundation Fighting Blindness
Connexin deafness National Center for Biotechnology Information (NCBI): Connexin 26 Alport Syndrome Alport syndrome Ask NOAH About: Kidney and Urologic Diseases eMedicine: Alport syndrome MEDLINEplus Medical Encyclopedia: Alport syndrome National Organization for Rare Disorders
Brachio-oto-renal (BOR) syndrome Boys Town National Research Hospital: BOR syndrome
Jervell and Lange-Nielsen syndrome (Long-QT syndrome) NCBI: Long-QT syndrome
Pendred syndrome What is Pendred Syndrome?
Stickler syndrome Boys Town National Research Hospital: Stickler syndrome
Treacher Collins syndrome Treacher Collins Foundation
Usher syndrome NIDCD Health Information: Usher syndrome What is Usher syndrome?
Waardenburg syndrome NIDCD Health Information: Waardenburg syndrome
Boys Town National Research Hospital: Waardenburg syndrome
NCBI: Waardenburg syndrome
Parent/patient resources American Society for Deaf Children Association of Late-Deafened Adults (ALDA) Children with Disabilities Communication Options for Children Who are Deaf or Hard of Hearing Hands and Voices Listen Up! My Baby's Hearing National Association of the Deaf National Information Center for Children and Youth with Disabilities Self Help for Hard of Hearing People, Inc. Technical Assistance Project of RESNA
